Taking into account the fact that almost three months have elapsed and a multitude of events have occured, I think I'm going to divide this blog entry into Categorized Posts. In an effort to make the most of your time and mine, this is going to be the "Wham, Bam! Thank you, Ma'am" version of the past ninety +/- days. If I fail to mention any crucial events, you probably won't even realize it; therefore, you won't be any worse for the wear and your life won't be any less fabulous due to the omission! So, on with the program!
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Could it get any more dramatic? I mean, seriously people. If you happen to have the misfortune of being a friend of mine on FaceBook (bless you for putting up with my whining) then you must have thought I had gone crazy when I posted this on April 5th of this year...
"There's one path thats planned out; its just about to start, steady, predictable,
with a known end, I prefer this one, this one is MY plan. There's that other path;
I've been on this one for a while, Im tired of it, I only see a piece of it at a time,
I don't like it, its scary & unknown, it looks really rocky with lots of ups &
downs, is this GODS plan for me? Come on God, give me a hint! I can keep a secret!"
...and again when I posted this on April 18th...
"Dear Creator of Cool Whip, Thank you for creating a food that tastes good
and doesn't hurt my stomach. Too bad its mostly air and has no nutritional
value whatsoever :( "
Thats me in a nutshell! The word 'interesting' doesn't quite convey to the masses the way life has been for the past several months. More fitting would be 'bipolar,' 'roller coaster,' 'extreme;' you know, all those words that communicate polar opposite situations. I have learned many things of how to be and how not to be, what to do and what not to do. I have felt many emotions, needle pricks, and sickly sensations. I have made decisions and struggled on whether they were the right ones. I have gone through minutes that seemed like eternity and lived through things that I didn't think I could make it through. In essence, the drama has been intense. So in the life of me, the drama begins a little something like this:
The only doctor in town that would take my case after I came out of the hospital with a blood clot in my brain in January of 2009 left town in September of last year and didnt notify me. I found out when I went tried to get an appointment for some major pain in my right leg. We're talking bone-breaking pain. Alas, I had no doctor to treat me. I was thinking the worse, of course....another blood clot and proceeded to FREAK OUT. His replacement doctor wouldn't see me for a month and a half....not acceptable. I prayed for intervention. God sent this in the form of another doctor, just not one for me. Weird, huh? My children's pediatrician is FABULOUS! We were talking one day at church and he mentioned that he had just met a new doctor and he thought she would be a good match for me. Boy, was he right. I called to make and appointment with her and she was able to see me the NEXT DAY!!!! During the appointment I was concerned that she wasn't going to be willing to take me as a patient like all the other doctors in town, since I am so high-risk. When I told her this, she said that she had never heard of a doctor not taking a patient due to them being high-risk. Needless to say, she is my new doctor and she is a BULLDOG. Where Mayo Clinic and my previous doctor told me to live with my stomach issues and the inability to eat she was not willing to accept this and wanted to find the reasons behind the issue! Let's just say I have had every test, procedure, blood draw, screening, etc. We have had successes and failures. I have been sicker than I have ever been but we have found out some things that we would have never known had she not been so intense. Being the intense doctor that she is, she sent me to her husband who is the local cardiologist. He is just as wonderful as she is and just as determined. Though I fear that my case is frequent fodder for dinner table discussion!
Some things we have learned about this wonderful body God gave me and is healing as I type:
---There is a hole in my heart (either a PFO or an ASD) that more than likely caused the blood clot in my brain....woohoo for knowing a cause
---I am allergic to anesthesia, all narcotics, pain meds, etc. Thus we will never know if the hole in the heart is a PFO or ASD due to the fact that I would have to have anesthesia for it to be fixed
---I had lymph nodes show positive on a PET scan which were subsequently removed which upon pathology showed no metastatic carcinoma!!! Which means no cancer in the lymph nodes!
---There is a 9 cm mass on my pancreas which did not show up on the PET scan. It was classeified on CT as confluent gut but all doctos say MRI is needed to rule out non-PET responsive neoplasm. This will not be done! Hard decision but I have peace with it : (
---My tumor markers are off the charts but there are no tumors showing up on PET! Oh, the drama!
---My stomach is slowly and I stress the slowly part, starting to sporadicly work and Im being incredibly liberal with both 'slowly' and 'sporadicly.' I have decided that everything I eat is going to hurt so Im going to eat anyway. Its that or die. I dont particularly like that option so Ive chosen the pain with consumption option.....except Cool Whip, of course it doesnt hurt at all!
---My weight is stable, Praise the Lord! Through the course of this whole ordeal I have lost 107 pounds. I struggle finding clothes to fit and frequently shop in the little girls section. Let's just say Im tired of hearts and rainbows on everything.
---BIG SMILEY FACE ON THIS ONE!!!!!!!!!!! I have decided to 'Let Go and Let God!' No more tests and no more doctors unless I absolutely have to go to one for a check-up or something. Ill still be monitored regularly but no more searching.
So thats the health path; the roller coaster path; the bipolar path; the BLAH path. Now onto the WOOHOO path! One wacky Thursday I received a call from my doctor telling me my tumor markers were off the charts. Bad news : ( I came home to tell Philip. While waiting for him to get home, I checked the mail and received my acceptance letter for Nursing School! Hello EXTREME emotions! Happy Happy Nursing School....Sad Sad Tumor Markers High.
So while on this blasted roller coaster of health junk, Ive been preparing to start Nursing School all the while not knowing if I would really be able to. My doctors told me that I shouldn't take my immunizations shots because I was too sick to get them....I took them anyway! My doctors told me I shouldn't expect to get the all clear from the lymph node biopsy....I got the all clear! My doctors told me I wouldn't have the energy to go to class if they put me on a cardiac rhythm-regulating med....I refused the med! My doctors think I should have an MRI on my pancreas to check on that mass....Im not doing it! My doctors tell me not to go to school because I am too sick...I AM GOING TO SCHOOL AND I AM GOING TO SUCCEED! All it takes is for one person to tell me they think I cant do it to make me want to prove them wrong. I have three people telling me that I shouldnt do it. They also told me not to have major surgery without anesthesia....and I did and Im still livin'. If my God can get me through a blood clot in my brain and can get me through no food for many many months and can get me through surgery without anesthesia, my God can get me through 15 months of Nursing School. Because MY GOD CAN DO ANYTHING!
Please keep in mind, its just not me experiencing all this. I have three other people that go through these things with me. Some of this Philip and I chose to keep from the children due to the timing issue of situations coinciding with major testing at school. Other times we just felt it was just too stressful for them to be told that I was having yet another procedure and for them to be worried for another day. I want them to have a normal childhood; its not normal for them to know what to do and who to call when their mom has a seizure or to have to ask their mom if she's eaten on a particular day. There is nothing normal about that : ( My steadfast and true hero through all this has been and continues to be the love of my life and my best friend. He has learned with me, helped me process situations, helped me make decisions and supported me regarding the one's I ultimately had to make myself. He has held my puke bucket and smoothed my brow, covered me up and warmed me when I was cold. He has asked questions I have forgotten to ask and answered questions when I asked 'why me?' He encourages me to eat and has supported my goal to go to Nursing school even when my doctors have told me they dont think I can do it. He is and continues to be an amzing man, father, and husband and there is no way my life would be as wonderful as it is at this particular moment if he wasnt it.....because as I found out through all these things its not what you do or who you are that makes your life wonderful its WHO YOU MAKE YOUR LIFE that makes your life wonderful. And these three people are my life!
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| Easter Sunday 2011----My Wonderful Life : ) |